This blog will be about my new journey to rediscovering "me"! I am writing to understand my feelings during life experiences and answer questions I ponder daily with the situations I am confronted with as a chronic pain sufferer. I hope this will not only enlighten me but you as the reader....to truly be part of this awakening to living with pain.
Family, Holidays, Pain and Depression, yup that sums it up!
Family, they can either be a huge comfort to you or give you pause for fear that maybe that one member you don't get along with will somehow know you thought negative things with the image of their face plastered in your mind just from the word, impossible but yet our bodies reacted with a fight or flight reaction! Tell me I am wrong........?
Then we add Holidays! Since Thanksgiving just passed those feelings are fresh and clear, plus with Christmas or Hanukkah creeping up too fast our emotions are already focusing on the list of things we need to accomplish in about 4.5 weeks! So are you excited, catching all the sales, wearing your Santa hat with bells on your shoes, do you have everything all mapped out, scheduled and organized in your planner and your house all decked out inside and out with your theme of 'snowmen'? No? You are laughing, thinking theme? Isn't Christmas the theme? Santa hat, bells, lists, schedules, organized? Wait, you are telling the truth, people actually accomplish all that and more don't they? Well, I am certainly not that person and to be honest it sounds like a Hallmark movie where everyone gets along, love is in the air, strangers hold doors and give up their find for you, and the spirit of Christ's birth is contagious and your community donates all their time and money to save the family whose house burned down a week before the holidays! I can hope, dream, and pray with all my faith and still never witness one kind deed during the 12 days of Christmas. Stress! That is what sums up Holidays to me, wait did I say family did that too??? I think I am screwed but let's continue on to our next word, pain!
For those of us who live with chronic intractable pain, the word 'pain' has a far different meaning then someone who stubbed their toe and walked it off. We do not get 100% relief from any therapy or treatment so we always have to think about how our pain will be effected when preparing for family, and holidays. It is unpredictable, planning to hit the 5am sale on Friday morning is a ridiculous thought, we may only fall asleep at 4am so getting in a car with little or no sleep is dangerous plus we would need to skip meds and remember that if we don't get a bite to eat by 8am to take meds that are necessary we could go through withdrawal. We can't plan anything in advance because we just don't know what our pain levels will be and for some whether we can even ambulate alone. We put ourselves at risk for flares just for trying and we push so hard because we don't want to disappoint anyone, especially our families.........in fact most of us at some point hide true pain levels and difficulties in front of family that you just don't want to scare, their worrying can add even more stress and higher pain. We perform balancing acts daily and end up failing, why? Because we can't accomplish even one item off that long list that just gets so enormous and overwhelming we self defeat ourselves which leads to the last word in this ominous title, depression!
We skirt around this word a lot because it has such a negative aura, but honestly speaking we all experience some kind of depression in our lifetime. Yes, it can mean just the blues or sadness but to most of the pain community it is a misunderstood stigma and label used incorrectly by health professionals. It certainly never benefits us to admit we have it because assumptions are immediately applied whether or not it appropriately describes our depression! Some professionals have gone as far as to remove all pain meds because you must be suicidal and having narcotics at home would be a death sentence, when in reality not having the narcotics available would certainly be more risky! Lets remove the one thing keeping us sane because we have no other course of action.......stupidity I say! We are constantly caught between being honest and keeping a facade in front of our doctors for fear that one wrong word will send us from PT to a padded room instead! If I could accomplish one thing on this pain journey it would be to erase all past assumptions of depression and separate those depressed so they stop living and those whose lives are being altered by external factors therefor causing a state of depression.....one is the disease the other is a symptom as a result of some other factor!
A few words with various meanings, attached feelings and added stressors can certainly change the course of our thoughts, assumptions and actions in life but when you add pain to them you have a different recipe that can easily head for disaster! Be thankful for what you are blessed with and mindful of those who are not! Hold onto your faith this holiday season and remember that Christ is the true meaning, He expects no more then for you to be a faithful servant! The cookies, gifts, and gatherings are just a bonus not your sole (soul) focus. Please reach out to someone struggling, we all have something to offer and if Christ was willing to give His life for you can you honor his birth by doing something nice for another?
God Bless You All Merry Christmas!!
2 comments:
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Little sister this is all so true and as I read it tears were falling because I know you are having a really difficult time and it breaks my heart I also know there is nothing I can do but pray for you and be there for you and I will always do both.
ReplyDeleteI so understand how pain makes the depression come on and how hard it is to talk to doctors about it because of fear of losing the narcotics we need to survive. It is like that letter I got from workers comp. saying people commit suicide on the medicines I am on. I am thinking if I had of wanted to do that I would already be gone but if they pull them and don't give them to me and throw me into severe withdrawal it is then they need to worry about suicide. They are so stupid when it comes to chronic pain and how our bodies work. I don't want to be throw into a shrink with them again but feel they will force it. Like you I get the point of they need to understand what is causing the depression and between them and the pain they are adding to it.
And I understand about the family here it is almost getting to Christmas Eve and the thoughts of going to the family with me is so over whelming. I only do it because I love Aunt Pat when she is gone I know family get togethers will go too. Sad but true it has gotten bad and like with my family I have one that does not like me now judges how I live and forgets I never judged her in the past I only loved her but I do not get that back. I do wish you did not have the stress of worrying will things change because she gets a wad in her panties and everyone mad again.
And little sister I have been wondering for years where the true meaning of Christmas went??? This is the first year I am not going over board and stressing because there will not be many gifts and I am not able to do a lot of baking and am not good at it like you so they get what they get and as you reminded me I don't need to lose the meaning of Christmas. I wish the kids here who expect so much had to give a day to help someone less fortunate out.
During this rough time you know you have me I wish we were closer and I thank God daily that I have you. I cannot imagine my life without you. Great blog it describes everything oh so well. I Love You Dearly...
Love,
Viv (Me2)
Received this beautiful reply in my inbox from a fellow RSDer and wanted to share it:
ReplyDelete"Denise:
I read your chronic pain blog about all your personal feelings,experiences,and assumptions in everyday life. It must have taken some courage to write all that to perfect strangers,but I know at that same time you want people to understand what you go through with your pain and maybe help someone out there if they should be going through that same ordeal! It was very encouraging,inspiring,up-lifting and at the same time gave that faith,guidance,hope that even with a awful diseases like all that you have,with God's grace and strength we can get through good and bad times and not to give up! I truly enjoyed reading your chronic blog, I'm sorry to hear you had
to go through some really tough times,but hopefully now will be better times for you!"
Anonymous