Part I of Hibernation Period

Hello everyone!

I know it has been forever since I have written and I feel terrible about that.  We all know that there are times in our life where we need a break just to figure out where we are, what we are doing and where we are headed.  I have done an enormous amount of thinking and made some important changes in my care that almost killed me and my inner spirit to keep fighting.  Some of you are aware of all that has happened and many have not so please keep that in mind as you read my summarized account of the last several months.

Many of you followed this blog in hopes that I would find "a miracle" with ozone therapy, we know that failed terribly and has actually speeded up the progression of my symptoms, in my opinion only! So, I was left feeling responsible for the failure of yet another treatment for RSD and ripping away the hope so many of us counted on; for that I am deeply sorry.  It was never my intention to hurt, or give false expectations to anyone and I pray that did not result in anyone giving up this fight!

As you can assume correctly this failure was an impressive blow to my hopes and dreams.  I did end up battling a severe depression period.  With pain comes depression as we all know, but this took something more, it took away my trust in the medical professional field.  I was treated horribly by Dr Robbins, he was verbally abusive, violated my privacy, and was ignorant of all my pain conditions.  It was a very difficult time for me because all my efforts to make sure he did not do this to anyone else failed! I filed state and federal complaints only to be misled and told because he did not accept insurance as payment he could not be held in contempt of HIPPA.  I learned a lot during this process but it almost destroyed my marriage, my support systems, and my will to live.  I can safely say now that all is back on track and I have restarted my climb up this treacherous mountain of surviving (not beating, curing, resolving or eliminating just learning to survive) this pain and suffering.

I decided to break down this summary into several parts because I can no longer sit with a laptop on my legs for any length of time, I know you will all understand and will come back to read part II of this long hibernation period!  Thanks again for reading and supporting one of my distraction techniques of blogging.  I am making a short term goal of writing at least 2-3x a week in small increments, I pray you will continue with me on this journey. Until then, remember this quote I wrote for a dear friend recently: "God has a plan, and although it may come packaged in a brown paper bag it still may have incredible value within!"

1 comment:

  1. My Dearest best friend, this is truly an amazing blog, I have read a few blogs in my time but none as honest and heartfelt as yours. I feel you should think about writing a book and sharing with others the pain and misery of living like this. Then share with them your hopes and dreams of overcoming this and just waking up each day in pain. I am very much looking forward to following your blogs and please know someone across the big pond loves you very very much. God bless. xxxxxxxxx

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